罕见病“不罕见”ACH是儿童生长发育障碍的一类罕见疾病，发病率约为1/15,000–1/25,000，全球共计约25万患者。虽然ACH是罕见病，但大家对“侏儒症”并不陌生，ACH则占全部遗传学侏儒症的70%左右。
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"It's actually very hard to point to another moment in the last 25 years where you have the combination we see today," said Jed Kolko, senior fellow at the Peterson Institute for International Economics.